Introduction This study aims to understand the impact of HIV/AIDS related issues on the lives of teenagers and young people, activists from the “National network of teenagers and young people living with HIV/AIDS (RNAJVHA) and the State network of teenagers and young people living with HIV/AIDS of Rio de Janeiro (REAJVHA-RJ)”.

Methods The methodology used was qualitative research through the narratives of life stories giving voice to young people living with HIV, infected by HIV transmission (horizontal and vertical), which are part of the construction of the Social activism of the 3rd. Phase of the epidemic, post-universal and free access to public health treatments, a successful policy promoted by the Ministry of Health, provided by the Unified Health System (SUS).

Results We seek to understand: feelings, motivations, processes of composition and recomposition of identities, health risk management, relationship with social networks, integration of individual history in the broader collective history of the social movement, In an effort to expand opportunities to understand and reflect on the impact of the HIV/AIDS epidemic on their lives as teenagers and young people who are part of National Network. To reconstruct the individual historical experiences of their lives and cultures, to identify the moments of these adolescents and young people before and after their entry into youth activism, and to identify the moments of confronting the facts of life as positive HIV serology. We analyse the movements present in the social life and in the existence of teenagers and young people who exercise their role as actors/authors of their own life histories.

Conclusion Young people bring the proposal of an emergence of activism and a public health more integrated in the care and not only in the control of the disease. They want spaces to be heard and to be able to speak about their experiences, understanding that only in this way can they build their own life trajectory in this society in which discrimination and disinformation in HIV/AIDS are preponderant factors.