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What message are we sending to young people who are trans or gender nonconforming when we don’t even count them? We suggest their identities don’t even matter.
—Laverne Cox, 2015 Social Good Summit
Trans and non-binary people are key populations whose HIV prevention and treatment needs have been neglected. A 2013 meta-analysis of data from 39 studies conducted in 15 countries reported a global HIV prevalence among trans women of nearly 20%, with trans women estimated to be 49 times more likely than other adults to be living with HIV.1 Moreover, mortality from HIV/AIDS among trans women in a large cohort study was just over 30 times that of age-matched population controls.2
Data on HIV among trans and non-binary people in the UK are scant. This is important as HIV prevalence among trans people in the UK may differ from global estimates given lower rates of undiagnosed HIV infection in the UK, high levels of viral suppression and access to free healthcare. Prior to 2014, HIV surveillance systems in England used binary gender identity categories, rendering trans and non-binary populations living with HIV invisible. In 2017, Public Health England (PHE) presented preliminary data from the HIV and AIDS Reporting System (HARS), reporting that 199 trans adults accessed HIV care in 2016, representing 0.3% of all people accessing HIV care in England (personal communication, P Kirwan, Public Health England, 3 May 2018). Of note, these data reveal that trans adults with HIV were twice as likely as other adults to be diagnosed late with a CD4 count of <350 mm3. It is not possible to determine accurately the HIV prevalence among trans women and men in the UK because there are currently no census data on the overall number of persons who identify …
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