Attitudinal statement | Doctors(n = 151) | Patients(n = 400) | p Value | Patient characteristics | |||||||||
Years since diagnosis | Outbreaks past 12 months | ||||||||||||
0–1(n = 40) | 2–4(n = 50) | 5–10(n = 100) | 11+(n = 209) | 0(n = 138) | 1–2(n = 142) | 3–5(n = 77) | 6+(n = 43) | ||||||
A | B | C | D | E | F | G | H | ||||||
Emotional impact of GH (%) | |||||||||||||
I was very upset when I was first diagnosed with GH | 99 | 89 | <0.001 | 95 | 94 | 89 | 87 | 91 | 87 | 90 | 91 | ||
I have learned to live with my GH | 85 | 86 | 73 | 86 | 83 | 89 | A<D | 88 | 89 | 86 | 70 | E>H | |
I would do anything to get rid of my GH | 92 | 85 | <0.01 | 90 | 92 | 93 | 78 | 79 | 86 | 87 | 93 | E<H | |
I would never tell my friends that I have GH | NA | 70 | 63 | 76 | 74 | 67 | 68 | 66 | 75 | 74 | |||
I feel very embarrassed about having GH | 96 | 67 | <0.001 | 88 | 82 | 69 | 59 | A>CD | 59 | 66 | 74 | 84 | E<GH |
I am very upset about having GH | 97 | 65 | <0.001 | 78 | 76 | 70 | 57 | A>D | 59 | 60 | 74 | 84 | E<GH |
I constantly worry about having the next outbreak | 75 | 38 | <0.001 | 58 | 52 | 44 | 27 | A>D | 29 | 35 | 47 | 58 | E<GH |
Having GH is not a big deal | 9 | 33 | <0.001 | 30 | 32 | 30 | 35 | 39 | 37 | 29 | 9 | E>H | |
Transmission risk (%) | |||||||||||||
I can handle the outbreaks of GH, it’s the risk of transmitting the virus that really troubles me | 62 | 83 | <0.001 | 88 | 70 | 82 | 85 | 82 | 85 | 86 | 72 | ||
I think condoms are very effective in preventing someone from getting GH | 93 | 60 | <0.001 | 63 | 56 | 60 | 61 | 66 | 61 | 60 | 40 | E>H | |
I believe GH can be totally controlled by treating each outbreak | 67 | 57 | <0.05 | 73 | 62 | 60 | 52 | A>D | 67 | 57 | 52 | 33 | E>GH |
I am constantly worried that I might pass GH to my sexual partner | 87 | 56 | <0.001 | 78 | 60 | 64 | 47 | A>D | 49 | 57 | 61 | 67 | E<H |
Having GH has restricted my sex life a lot | NA | 51 | 58 | 50 | 52 | 50 | 41 | 51 | 62 | 65 | E>H | ||
I have not changed my sexual practice since the diagnosis of GH | NA | 37 | 30 | 40 | 45 | 33 | 42 | 33 | 36 | 33 | |||
I am totally comfortable telling a new sexual partner that I have GH | NA | 37 | 33 | 30 | 37 | 39 | 36 | 45 | 27 | 30 |
Statements reflect wording posed to patients. For doctor statements “I” was replaced with “most patients” for all statements except the second last statement which read “I feel completely comfortable discussing GH with my patients”. Both GH patients and doctors were asked to indicate their agreement with each statement using the following scale: “agree strongly, agree somewhat, disagree somewhat, disagree strongly”. Independent sample t-tests (assuming unequal variances) were performed to test for significant differences between: (a) doctors and patients, (b) patients diagnosed within 0–1 years versus patients who had been diagnosed 2–4 years ago, 5–10 years ago or 11 or more years ago and (c) patients with zero outbreaks in the past year versus those experiencing one to two, three to five or six or more outbreaks in the past year.
Differences by patient characteristics noted if significant at p<0.05.