Study name | Study aim | Why PPI was difficult | Who were lay advisors | How were lay advisors accessed | How the team engaged with lay advisors | How the study benefited |
Case study 1: CaWWRiS | To understand the social, cultural and historical factors linked to poor sexual health for young Black Caribbean women | Few organisations are commissioned to deliver sexual health services specifically to Black Caribbean communities. | Black Caribbean women working in sexual health organisations with Black Caribbean young people | Networking at relevant events and reaching out to sexual health organisations | One-to-one and group consultation (in person) | Supported development of age and culturally appropriate content and terminology in recruitment materials, helped design topic guide for qualitative research |
Case study 2: PADCAT | To develop a clinical prediction rule to identify women attending GPs who would benefit from sexual health advice, STI testing and/or contraceptive advice and supply | Risk group is not well described—study was seeking to define them. | Female GP attendees aged 16–44 years | Opportunistic consultation of patients in GP surgeries awaiting an appointment | One-to-one consultation (online and in person) | Shaped data collection methods, ordering and composition of questions for tool and content and format of participant information sheet |
Case study 3: YS study | To explore barriers and facilitators to chlamydia testing via general practice for young people | Chlamydia is an episodic infection. | 16–24 year-olds from general public | Advertisements on online social media platforms | One-to-one consultation (online) and group consultation (in person) | Development of study materials (the name of the study, the study logo and recruitment materials), participant information sheets, potential recruitment strategies |
Case study 4: MSHSMW | To identify the sexual healthcare needs among women with problematic drug use | Drug use is a stigmatised behaviour. | Women who were engaged in drug treatment | Role descriptions distributed by staff at NHS drug service | Group consultation (in person) and remotely (via postal services) | Informed recruitment strategies, study advertisement plan, data collection materials and dissemination |
CaWWRiS, Caribbean Women, Well-being and Risk Study;GP, general practice; MSHSMW, Modelling Sexual Healthcare for Substance-Misusing Women;NHS, National Health Service; PADCAT, Psychosocial And Demographic Clinical Assessment Tool;PPI, patient and public involvement; YS, You and Sex.